This page is dedicated to the Heroes I visit. Tell us your story. Send me a picture. Get it featured here. Heroes come in all forms. These are MY HEROES. Thank you for looking.
Megan Adams
Megan was diagnosed with stage 3 cervical cancer in the summer of 2021. She has already gone through one round of chemotherapy treatment with no success. After Megan had her MRI a few weeks ago it was found thatvthe cancer has spread, and she is currently fighting for her life. She is currently receiving ongoing treatment as guided by her doctors.
Jamarion Thiry
Was diagnosed with nephrotic syndrome and F.S.G.S. At the age of 22 months and is 6 years old now. He takes numerous types of medication to maintain normal kidney function and is currently going through new treatments with infusions to help prolong his remission.
Nephrotic syndrome is a collection of symptoms due to kidney damage.[1] This
Was diagnosed with nephrotic syndrome and F.S.G.S. At the age of 22 months and is 6 years old now. He takes numerous types of medication to maintain normal kidney function and is currently going through new treatments with infusions to help prolong his remission.
Nephrotic syndrome is a collection of symptoms due to kidney damage.[1] This includes protein in the urine, low blood albumin levels, high blood lipids, and significant swelling.
Focal segmental glomerulosclerosis (FSGS), also known as “focal glomerular sclerosis” or “focal nodular glomerulosclerosis,”[1] is a histopathologic finding of scarring (sclerosis) of glomeruli and damage to renal podocytes.[2][3] This process damages the filtration function of the kidney, resulting in protein loss in the urine.[3] FSGS is a leading cause of excess protein loss--nephrotic syndrome—in children and adults.[4] Signs and symptoms include proteinuria, water retention, and edema.[2][5] Kidney failure is a common long-term complication of disease.[5][6] FSGS can be classified as primary versus secondary depending on whether a particular toxic or pathologic stressor can be identified as the cause.[7][8] Diagnosis is established by renal biopsy,[2][9] and treatment consists of glucocorticoids and other immune-modulatory drugs.[10] Response to therapy is variable, with a significant portion of patients progressing to end-stage kidney failure.[5] FSGS is estimated to occur in 2-3 persons per million, with males and African peoples at higher risk .
He’s a strong little man who loves cars and his superheroes.
His favorites are Spider-Man and Batman.
He make’s us want to live everyday to its fullest.
Bobby Jones
Hi
On August 26, Bobby went into the hospital to have surgery on his neck. Less than 48 hours later he went into full cardiac arrest resulting in 15 minutes of chest compressions to bring him back. He ended up spending 80 days away from home in 3 different hospitals, the last 2 were 1 month each in Pennsylvania. During his time there he ended up having 2 more surgeries only one week apart from each other, 1 for an infection that set in at the surgery site and the other was due to his left lung collapsing. He has severe swelling. He was on a ventilator, had a feed tube and received dialysis for approximately 2 months. Our hopes of having him home for the holidays were looking pretty grim. Then we get the best news we had over the past few months, I, had to go to PA for a 2 day training course on how to take care of him then we can make arrangements to bring him home. It was time to accept the news and support them however were could. Back in August when the chest compressions were performed on him it caused a lack of blood flow to his spinal cord and has left him a quadriplegic. We hoped over time he would regain use of his hands or legs but as of now, he has not. He needs 24/7 care and in order for him to leave his home he needs to travel via wheelchair van. I have called to arrange his rides to and from doctor appointments and the price is so high they will not be able to afford it. Bobby went into the hospital walking, holding my hand and expecting to be home in just a few short days. 81 days later, donning a wheelchair, he is now a prisoner in his own home. With a grandchild on the way, nieces and nephews to enjoy, and multiple doctor appointments ahead they need transportation my brother is safe to ride in. Please help us make this part of his new journey an easy one.
Thank you from the bottom of our hearts! Donations can me made via check or money order made out to Bob Jones wheelchair van fund. Mailed to Michelle Jones PO Box 1373 Grand Island NY 14072.